Surgery week

I think everyone we know already knows this, but just wanted to update a little.  Samuel will be having heart surgery on Thurs, July 18.  I am running around trying to make sure everything is in order.  Ha!  That's kind of funny if you know me very well.  I'm mostly just running in circles and doing things that are pretty much meaningless ;)  Surgery is scheduled for 7:15 a.m.  The surgeon said 4-6 hour surgery.  They said if everything goes perfectly, Samuel will be in PICU for 5-7 days.  I won't try to explain the surgery, just suffice it to say that the surgeons just kept saying "high risk."  There are lots of details that could be prayed for, but I think asking God for a perfect surgery with no complications before, during, or after will cover it.  For all those who have told me you're praying, thank you.  We sure feel them, as will the surgeons and Samuel.  We will post updates on Facebook as we can.

He is ABLE!

~Martha

A prayer journal of sorts

So I've been thinking A LOT about Samuel's upcoming surgery.  Surprised, right?  Those thoughts include not only the surgery and Samuel's health, but the effects on the rest of our family.  I will admit that worry is probably a better way to describe a lot of those "thoughts."  We're all familiar with the "what if" game, right?  I am so thankful for the Holy Spirit's intervention in my thoughts  worries.  My thoughts turned to prayers already answered just in Samuel's adoption journey.  I went back through this blog and looked at the prayer requests and reminded myself of the answers.  Here's a synopsis.

1) Got our pre-approval from China, even when we didn't meet all the qualifications.
2) Home study and medicals complete.
3) Hotel was available during Canton Trade Fair.
4) God's financial provision
5) Good timing for travel
6) Good health for everyone
7) Good flight arrangements
8) Samuel would know we love him and trust us
9) Samuel's health would be strong enough for stress of meeting us/getting him home
10) Smooth paperwork process in China
11) Samuel had a negative TB test
12) 31 hrs of travel home went well
13) Heart cath went well

I KNOW there has been many more answered prayers, but I found these in a five minute scan of the blog.  Yesterday, I picked up a Mark Batterson book (for $5 at Mardel) called The Circle Maker.  My friend Kim H. had mentioned reading it and I thought, why not?  I'm just a couple of chapters in, but it's about powerful prayer. 

So friends, I am committing to praying big prayers about Samuel's surgery, recovery, and our entire family during it all.  Because I know that my stalkers' prayers were a big part of all of the above, I will share my specific requests yet again.

• completely successful surgery and recovery with NO complications
• doctors say 5-7 day minimum hospital stay - let's pray for 5
• my girls will be safe and happy while Matt & I are so occupied with their brother
• Matt & I will have all the physical, emotional, and spiritual energy we're going to need

Lastly, a personal request.  I need to make some big changes personally to improve my health.  I can't do it.  Pray for me to submit my will to His and do what it takes.

Thank you, thank you, thank you!
~Martha

"Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us, to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen."  Eph 3:20-21

I'm so dizzy, my head is spinning

Anybody recognize that song? 

Matt & I met with the pediatric cardiac surgeons yesterday.  They explained, again, the problems with Samuel's heart.  I think, again, that I understand mostly.  They also explained what they need to do to repair things.  Then they explained the dangers.  And there are plenty.  From my very surface understanding, the dangers are not really in the surgery itself, but how Samuel's body reacts to the repairs.  God made our bodies in such a miraculous way that our bodies adapt and modify when something is wrong.  Samuel is still alive today because his body has adapted.  Those adaptations, however, complicate things when it comes to repair.  One crazy thing we learned is that Samuel's hemoglobin is twice what it should be.  Most people's blood is the consistency of water.  His is more the consistency of oil.  Most people's blood oxygenation level is 100.  His is 76.  His body is used to these things.  They have to be careful not to change either too quickly or his heart will shut down.  There are more issues, but honestly, I can't even explain.  Matt looked me when we left there and said, "I think I would have rather been uninformed."  We laughed,  nervously. 

You might be thinking that we knew this was serious and we knew what was coming before we ever went to get Samuel.  You are right.  We now know some of the technicalities, but we knew this heart defect was not a walk in the park from the beginning.  It feels different now because we know and love our son intensely, inexplicably, just like I gave birth to him.  The thought of them splitting his chest open, messing with his heart, putting him on a bypass machine, trying to keep him alive during and after that and all that entails feels way different now.

Now that you're all depressed...the good news.  One of the surgeons kept talking about how shocked he was at Samuel's energy.  He said he expected us to carry in a very lethargic little boy.  Samuel ran around the office, getting into things, talking, busy as usual.  He could not believe it.  His partner said there is obviously some serious strength in this little guy.  Both surgeons also very naturally referred to how God made the heart, mentioned the grace of God, and how we would pray that certain things are or are not the case.  They know the Lord and pray over their patients.  That is an incredible, incredible comfort.  Also impressive was that the cardiac nurse went out into the waiting room while Matt & I talked to the surgeon and explained things, complete with diagrams and a heart model, to Courtney & Cassidy.

Samuel's surgery is currently scheduled for July 18.  The cardiac team will keep researching and keep consulting other surgeons around the country to learn all they can before that.  We will be trying to prepare for Samuel's hospital stay.  It could be a week or weeks.  Our family is tight.  We don't like to be separated.  We will have no choice while Samuel is hospitalized.  Emotions are running high in all of us. 

Here's some specific prayer requests...that the cardiac team will find the perfect information, perfect action plan for Samuel; that we can make good arrangements for our whole family during the hospital stay; that God's peace will replace fear in all of us (extra measure for Cassidy, please); that we will be physically, emotionally, and spiritually ready for this.

Now...pictures...

Who needs toys when you have paper, pens, and paper clips?

 I was trying to get this ornery little boy to look at me to take his picture.  He did eventually, but this picture shows his personality better.

I was trying to get a good picture of us going to the VBS Friday night program/carnival.  It seems this group can't do that, so here's the real us.

 

"Now all glory to God, who is able, through his mighty power at work within us, to accomplish infinitely more than we might ask or think."  Ephesians 3:20

~Martha

Boundaries, updates, stalkers

So here we are, almost 7 weeks from Gotcha Day. Things are kind of a blur to me.  Have 7 weeks really passed?  It's amazing at how far we've come and a little daunting that we have so far to go.  Samuel is communicating with us very well.  I really don't know how well others can understand him yet, but we're getting new (and appropriate) use of words every day.  His sense of humor is sure evident.  Yesterday, the kids and I were visiting with my dad.  I told Samuel to point at his sisters and say, "Courtney is a goober.  Cassidy is a goober."  He complied.  He then turned his pointing finger to me and said, "Mama is a goober."  Yeah, well, he's figuring me out too. 

As for other adjustments, our little guy is testing boundaries every day as well.  If he doesn't stop rearranging and hiding his sister's stuff, we may have WWIII.  As a matter of fact, we are going to put a lock on his closet because he's doing the same thing to his clothes and I am struggling with the daily adventure of finding socks, underwear, and clothing for him to wear.  Unfortunately, he seems to want to test to see if Daddy is just a big playmate or if he really has any authority.  You see, Samuel has a lot bit of a temper, and he saves it for his Daddy most often.  He'll figure that one out for sure. 

On the "think we've got it" front, Samuel is sleeping well and not waking in fear hardly at all.  It's good to sleep through the night and be greeted with a chipper "Hi!"  in the morning instead of tears.  He is also figuring out that his family members do leave at times, but they always come back.  When one of us is away, he asks about them often, but accepts the answer pretty well.  Now, Courtney & Cassidy will both be heading to camp/mission trip in a couple of weeks.  We'll see how that one goes...

On the medical front, we are waiting.  Matt says I need to be patient.  Both Matt and God and anyone who knows me KNOWS that one is a toughie for me.  We have done scans and a heart cath.  The doctors have seen what they need to see.  However, the very capable surgeons have never done a surgery of this kind on a child as old as Samuel.  The typically repair kids when they are about 6 months old.  The cardiologist is researching and consulting other surgeons for their opinions and expertise.  I realize this is a good thing.  Overconfidence can result in mistakes.  They want to do it right.  Got it.  Not patient.  I guess the longer we wait, it's just sinking into me that this is a complicated, risky surgery.  I knew that.  Now that I have Samuel in my arms and see that smile every day, the reality is harder than I imagined.

I blabber on and on. Sorry.   You want to see pictures, right?  Here we go!

Samuel and his animals have a TV watching party.

 Courtney is training up the child in the important things.

 Samuel wants to ride this scooter like his sisters.  He mostly turns it over, but he still likes it.

 We went to visit my mom's grave on Memorial Day weekend.  This pic doesn't show Mom's grave, but two of my precious ones.  She sure loved our girls and she would have loved our Samuel.

I laughingly told the nurse in the recovery room after Samuel's heart cath that I needed to post something on Facebook for the benefit of my "stalkers."  She replied, "They love you all."  I just about cried.  I love my "stalkers" and am SOOOO thankful for you.  We do feel the love.  Keep stalking :)

Crazy thoughts

Update on Samuel's medical:  He will have a heart cath next week to take a look at a few more things.  It is rare in this country for a child of Samuel's age and heart defect to not have been repaired yet.  They are being extra careful to know exactly what's going on in there before scheduling surgery.

More than two years ago, Matt & I both felt God calling us strongly to something.  Maybe in the adoption world.  Nothing more specific.  We said yes, God, whatever it is, break our hearts for what breaks yours.  Later, we realized he was calling us to adopt a son.  Later, we saw Samuel's picture and profile and knew he was ours.  Yep, I have asked God several times, "Are you sure?"  What sane forty something aged people would adopt a child at a great financial cost knowing he has big health issues?  We've never told ANYONE that we were sane.   Think about it with me, though.  I read somewhere that most kids who have Samuel's heart condition have a life expectancy of 5 years without surgery.  We gave God a pre-yes.  How could we do the sane thing?  It was time for crazy!

Now think about this with me...Samuel is a 5 year old boy.  He has all the mental and emotional energy of any 5 year old boy.  The problem is that he cannot go outside and run around until that energy is somewhat released.  He can't breathe that well.  So that energy is pent up inside him a lot of the time.   He channels that energy any way he can.  So for example, he now knows exactly how much toilet paper it takes to make the toilet overflow; that his bathroom step stool helps him reach lollipops on the kitchen counter and that he can eat three before mom finishes her shower and catches him.   I now know that Samuel has a temper and doesn't like his plans to be thwarted.  To this mom of girls, crazy!

Some other (better) things he knows...He is loved.  Hugs and kisses are welcomed.  Baba, Mama, Courtney, and Cassidy will all come running when he calls our names.  He will always have plenty to eat and drink.  He has lots of clothes and toys to call his very own.  He has lots of good (and bad) things left to learn, but I pray he will always "hang his hat" on the he is loved part. 

We also learned quickly that Samuel has a good sense of humor.  Here's something that happened in the car yesterday.  Samuel was saying Mama over and over again.  Matt decided to help me out.

Samuel:  "Mama"
Matt:  "Samuel"
Samuel: "Mama"
Matt:  "Samuel"
Samuell:  "Mama"
Matt: "Samuel"
Samuel:  "Hey!"  (Matt turns to look at him.) "Shhhhhh!"

Too funny.   Here's a couple of pics.

 Afraid of the bath no longer!

Corn and carrots are the favorite veggies.  Corn is the most fun to eat.

 

Blessings to all!

 

"Every decision we make will be driven by fear or love. Who we toss the keys to determines a lot about where we end up."  Bob Goff

So how are things going?

In a nutshell, things are going remarkably well.  Perfect?  Nope.  Too many people involved. 

Samuel continues to adjust day by day, moment by moment really.  His language skills are blossoming one word at a time as he realizes what these crazy English words mean.  He's been repeating words since day 1, but he is starting to use some words and even phrases appropriately.  He definitely has "eat, drink, more, all gone, dog, Courtney, Cassidy, Baba, Mama, hey, okay, I love you more, hey buddy, uh oh" and probably a few more I can't remember.  This morning, I handed him a snack and he said, "Thank you, Mama." 

Sleeping pattern is not bad, but I do look forward to sleeping through the night again some day.  Most nights, he wakes up crying once or twice.  He just needs to be comforted and he goes right back to sleep.  I remember getting up twice last night, but I think I'm mastering the skill of not completely waking up while going to his room, giving a hug, and tucking back in.

As far as our little guy's health status, we don't know a whole lot yet.  The cardiologist pretty much confirmed his diagnosis as tetrolagy of fallot.  Samuel was NOT happy with the testing done last week, which prevented a completely good echocardiogram from happening.  Next week, they will do a CT scan and another echo until general anesthesia so they can get some good pictures.  I will admit that when Samuel gets totally out of breath after doing very little, it's disturbing to all of us.  I don't look forward to surgery, but I so want him to be able to breath without the struggle. 

In learning to keep up with this busy little boy while everyone else is at school and work, I haven't taken many pictures to share.  By the way, I failed to mention Samuel's most familiar words are "Samuel, no."  He may think that's his name....hmmmm.....He's also completely comfortable enough with his family to show us a temper when things don't happen in his plan and timing.  Yeah, that's not so cute, but it's a good sign ;)

I had to show the kiddo that the basketball goal was indeed not intended for hanging clothes on!  (I'll post about his clothing/hangar craziness later).

 Slam dunk!  Gotta enjoy this now, cause I don't think he's going to be exactly NBA height.

 The cutest nerds you will ever see!

For the blog deprived from the sleep deprived

I apologize in advance if this blog makes no sense.  I feel like I'm in a fog and cannot completely think clearly.  Jet lag is stupid.  Matt & the girls went back to their regular stuff today.  I hope they are faring okay.  If you see them and they look lost, help them out, will ya? 

 

Our flights home were pretty uneventful, which is good.  It seems Samuel's only relief from the torment of sitting in a seat that long was to go to the bathroom.  We did that A LOT.    For an incredibly long trip, we could not have asked for better.  Actually, for the whole two weeks, we could not have asked for better.  Our prayer warriors were faithful, I know that without asking. 

 

Samuel is adjusting really well.  New scenarios are very scary and the only way he knows to express that fear is to cry.  The vast majority of the time, he is happy and content.  He is completely goofy and likes to make us laugh.  I can report that he thinks looking at our dogs through the window is really funny and getting close enough for them to touch him brings on hysterics (the bad kind).  One step at a time. 

 

Nighttime has been a bit of a challenge.  He likes his bed and doesn't have a problem getting in it and going to sleep.  A couple of times each night, he wakes up and he is very scared.  Once he knows we're here, he's good.  The parents going back to sleep after that is the tough part ;)

 

I will admit that my camera has not yet been unpacked, but here's a couple of cell phone pics.  He does like his Lincoln logs, but he only sorts the pieces by size.  No building necessary.  He also has plain wooden blocks that are three colors.  He sorts them by color.

 The Tonka truck carries lots of things out of his room - cars, blocks, whatever.  He'd love it if he could figure out how to ride in it. 

For those of you who will be meeting Samuel in person soon, I will warn you that he has a bluish color to his skin.  Because of his heart condition, he just isn't getting enough oxygen.  We have an appointment with a pediatric cardiologist on Monday for tests.  Hopefully we will have him doing better soon.

I took a really cute video to share.  Too bad I can't figure out how to get it here.  Forgive me, but I'll work on it later.

Now, in completely random order, here are some things that I enjoy that I had completely taken for granted before this trip.

*drinkable tap water   *ice cold drinks  *my house  *my van  *my bed  *food that doesn't involve rice or noodles  *my shower that has a not so slippery floor  *familiar, pleasants smells  *clear blue Oklahoma sky  *traffic laws (one car per lane, slowing down for pedestrians crossing the street, use of blinkers, etc)  *QuikTrip, Reasors and even Walmart  *people who apologize if they almost run you over *two daughters who totally roll with the flow and always rise to the occasion  *a husband who puts my needs above his - two different guides looked at me during our trip and said, "He loves you very much."  *the POWER in prayer  *family and friends who really care about my family

There's probably more, but the brain is shuuuutttttingggg doooowwwwnnn.

I promise I'll get my camera out soon.

Ta-ta for now.

~Martha